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NPO Himawari no Kai Launches Awareness Campaign for Expanded Newborn Screening Tests

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NPO Himawari no Kai has partnered with Sekisui Medical to promote awareness of expanded newborn screening. They aim to create a society where all infants have access to appropriate screening through information dissemination and seminars.

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Frequently Asked Questions

Q: What is the expanded newborn screening test?
A: It is an optional test that, in addition to the conventional newborn mass screening, targets rare diseases such as primary immunodeficiency, spinal muscular atrophy, and lysosomal disorders.
Q: What is the purpose of the collaboration between Himawari-no-kai and Sumitomo Medical?
A: The purpose is to provide accurate and easy-to-understand information about expanded newborn screening tests, build an environment where parents can easily access information, and strive for a society where all babies have appropriate testing opportunities.
Q: What activities are planned for this collaboration?
A: Information dissemination, creation of awareness content for parenting generations, implementation of seminars and events, and promotion of activities in collaboration with related organizations and healthcare professionals are planned.
Q: Why is the expanded newborn screening test being emphasized?
A: Because advances in treatment methods and medications have made it possible to improve outcomes by detecting and starting treatment for diseases before or at an early stage of onset.
Q: What is the 'Maternity Passport' provided by Himawari-no-kai?
A: It is a free app provided in collaboration with the Japan Midwives Association, offering health information management and connections to professionals during pregnancy, childbirth, and child-rearing periods.